Support for Doctors and Researchers
Join us for a CME-certified Friday Satellite Symposium on HCL, preceding the 61st ASH Annual Meeting and Exposition. Details and registration link are below.
Grants for Promising Research in Hairy Cell Leukemia
Since 2016, we have partnered with the SASS Foundation for Medical Research to jointly fund up to $2 million in hairy cell leukemia research grants and fellowship awards through 2021.
Our primary research focus areas include:
• Basic science research exploring the biology of hairy cell leukemia;
• Correlative studies for biological and molecular markers associated with existing clinical trials where samples and clinical data are being collected; and
• Clinical research projects that contribute to studies providing real benefit for patients with hairy cell leukemia, including long-term follow-up studies, detailed quality of life studies, correlative lab studies and studies of new therapy options.
2019 RESEARCH GRANTEES
In 2019, we awarded $250,000 to exceptional researchers in hairy cell leukemia.
PAST RESEARCH GRANTEES
Dr. James Blachly, The Ohio State University, USA
Dr. Christopher Park, NYU School of Medicine, USA
Dr. Thorsten Zenz, University Hospital Zürich, Switzerland
Dr. Leslie Andritsos, The Ohio State University, USA
Dr. Judit Demeter, Semmelweis University, Hungary
Dr. Christopher Oakes, The Ohio State University, USA
Dr. Enrico Tiacci, University of Perugia, Italy
Dr. Omar Abdel-Wahab, Memorial Sloan Kettering Cancer Center, USA
Dr. Brunangelo Falini and Dr. Enrico Tiacci, University of Perugia, Italy
Dr. Ralf Küppers, University of Duisburg-Essen, Germany
Dr. Philip Thompson, MD Anderson Cancer Center, USA
Expanding the Scope of our Research
In 2017, we began a partnership with the SASS Foundation for Medical Research and the Leukemia & Lymphoma Society to jointly support $1.2 million in new translational research over a 3-year period. Through this partnership, we are funding studies in chemotherapy-free treatment strategies for hairy cell leukemia with the potential to greatly improve therapy for patients.
Both researchers are conducting clinical trials for which they are actively seeking patients.
Supporting Early Career Researchers in Hairy Cell Leukemia
Hairy cell leukemia Fellowship Awards
We fund the most promising research and invest in early career researchers to encourage professional development and expand scientific and medical advances in hairy cell leukemia. Since 2016, we have partnered with the SASS Foundation for Medical Research to jointly fund up to $2 million in hairy cell leukemia research grants and fellowship awards through 2021. In 2017, we launched the first cohort of HCL fellowship awardees with more than $150,000 in early career research support.
Fellowship awards are aimed at investigators who wish to pursue a career involving clinical or fundamental research in hairy cell leukemia or related leukemia research fields under an experienced research sponsor's mentorship. We fund fellowship awards up to $75,000 per year.
2019 Fellowship Awardees
In 2019, we awarded $150,000 in fellowship grants.
past fellowship awardees
2018 Fellowship Awardees
Dr. Sascha Dietrich, University of Heidelberg, Germany
Dr. Wendy Pang, Stanford University School of Medicine, USA
2017 Fellowship Awardees
Dr. Sascha Dietrich, University of Heidelberg, Germany
Dr. Kerry Rogers, The Ohio State University, USA
Dr. Justin Taylor, Memorial Sloan Kettering Cancer Center, USA
Hairy Cell Leukemia Patient Data Registry
Why is a Registry Important for Hairy Cell Leukemia?
Hairy cell leukemia is a rare disease. Patients with the disease are diagnosed and treated by many different doctors around the world. This makes it difficult for researchers to identify common factors that may help them better understand HCL and find a cure.
Many important questions still remain unanswered in hairy cell leukemia. More research is needed to elucidate outcomes in specific disease subtypes, complications of the diseases and their therapies, and other issues pertinent to patients such as quality of life.
How will the Registry Make a Difference?
We have invested in the development of a comprehensive hairy cell leukemia Patient Data Registry to provide researchers the resources to better understand the complications, treatment outcomes, disease subtypes, comorbidities and epidemiology in patients with HCL.
Our Registry is a critically important tool that will enable researchers to study hairy cell leukemia in ways not previously possible given the rarity of the disease. Through the Registry, we will cooperate and collaborate with patients, doctors, and institutions around the world to collect HCL patient data. The Registry will help researchers identify new trends in patient outcomes, discover previously unknown complications of the disease, and design clinical trials for new therapies until a cure is discovered.
How Can You Get involved?
We encourage your institution to participate in the Hairy Cell Leukemia Patient Data Registry to enrich our collective data and facilitate collaborative research and investigation in HCL. For information on how to involve your institution, please contact Anna Lambertson by email at email@example.com or by phone at +1 224.355.7201.
Annual Hairy Cell Leukemia Conference
Since 2013, we have hosted an Annual Conference focused on expanding knowledge of hairy cell leukemia. Our Conference is aimed at researchers and doctors with experience in studying and treating HCL, and whose knowledge would be enriched by information sharing and discussion with other practitioners. This annual meeting helps to create synergy and eliminate silos in knowledge and treatment of the disease among professionals in the field of hairy cell leukemia.
The Conference features presentations and panel discussions tailored for researchers and healthcare professionals, often in conjunction with a free Seminar for patients and family members. Leading HCL experts participate as speakers during the Patient Seminar.