Submissions to “Patients’ Stories” cannot be verified for their accuracy. They do not necessarily represent validated medical research. The reader should understand that these stories represent only the opinions of the authors and not the Hairy Cell Leukemia Foundation.
My brush with hairy cell leukaemia proved brief; scary at first; painful at times; but with excellent medical care (from the William Harvey Hospital team in Kent) and what I can only call a wonder drug, Pentostatin, all traces of my HCL were gone within four months of the initial diagnosis.
A year and more on now , and my blood counts are fine. I did develop secondary polycythemia for a few months but that too has vanished. As have those damn needles!
Maybe I’m not a typical case, and maybe it will return. But for the moment, all’s well – and as my splendid consultant told me: “If I was going to have leukaemia, I’d pick Hairy Cell any time.