What is Hairy Cell Leukemia?

Here you will find evidence-based information about symptoms, complications, variant hairy cell leukemia, and standard and new treatment for hairy cell leukemia. Learn what to expect if you are newly diagnosed, have relapsed or are in remission.


 

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Through the HCLF newsletter, you can receive occasional updates about HCL research and programs for patients.

 

Information and Support for Patients with HCL

We provide education and support for patients and families around the world. We respond to patient questions and make referrals to hairy cell leukemia experts and clinical trials. We provide educational webinars and forums for patients to learn about hairy cell leukemia treatment and research.

Program and Event Calendar

Throughout the year, we host informative webinars and remote and in-person forums for patients and families. Many of these programs include a presentation and discussion with experts from HCL Centers of Excellence. HCLF staff, board members and volunteers facilitate these meetings to empower patients with evidence-based information and help them build a strong network of support.

Materials from Past Programs

Did you miss a webinar or presentation or want to revisit content? We archive recordings and transcripts from most educational programs for patients, which you can access here on the HCLF website. 

Hairy Cell Leukemia Experts

We have developed a network of Centers of Excellence for hairy cell leukemia where healthcare professionals are working to advance understanding and improve treatment. We encourage patients with hairy cell leukemia to seek treatment for hairy cell leukemia at these centers, and we frequently turn to these HCL experts for assistance with questions and to support patients.

HCL Patient Data Registry

We have developed a comprehensive hairy cell leukemia patient data registry to help researchers identify new trends in patient outcomes, discover previously unknown complications of the disease and design clinical trials for new HCL treatment. We need as many patients as possible to participate to maximize the registry’s impact.

Together, we are making a difference in hairy cell leukemia.

The Hairy Cell Leukemia Foundation is the only 501c3 organization with a global reach dedicated solely to hairy cell leukemia.

Our mission is to improve outcomes for patients through high-caliber research in hairy cell leukemia, by advancing knowledge about HCL among hematologists, and by providing educational resources, comfort and support to patients and families. We fund the most promising research, promote collaboration and cooperation across an international network of institutions, and convene researchers and healthcare professionals to improve understanding and treatment of this disease. We provide a range of educational programs and resources for patients and families around the world.

There is more to be done.