https://www.hairycellleukemia.org/blog daily 0.75 2026-03-04 https://www.hairycellleukemia.org/blog/2026/3/4/ash-2025-hcl-poster-takeaways-understanding-map2k1-and-map2k2-gene-changes-in-hairy-cell-leukemia monthly 0.5 2026-03-07 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/72e66a8b-8488-4715-9e1f-a0a0da95a8f7/ash-poster-hall-1024x536.jpg HCLF Blog - UNDERSTANDING MAP2K1 and MAP2K2 Gene Changes in Hairy Cell Leukemia - Make it stand out Poster hall during ASH 2025 Annual Meeting https://www.hairycellleukemia.org/blog/2026/1/28/ash-2025-hcl-poster-takeaways-post-1-long-term-results-of-cladribine-plus-immediate-rituximab-in-hairy-cell-leukemia monthly 0.5 2026-03-07 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1772741029648-1YCTNGBS459ALTQ4D4XY/Image+2026-01-28+at+2.19.56+PM+-+Kreitman.jpeg HCLF Blog - Long-Term Results of Cladribine Plus Immediate Rituximab - Make it stand out Dr. Robert Kreitman at the ASH 2025 meeting https://www.hairycellleukemia.org/blog/2025/10/6/hope-and-progress-in-hairy-cell-leukemia-highlights-from-ou-most-recent-webinar-with-dr-andritsos monthly 0.5 2026-03-05 https://www.hairycellleukemia.org/blog/2025/8/13/non-chemotherapy-treatment-vs-standard-chemotherapy-for-hcl-patients monthly 0.5 2026-03-05 https://www.hairycellleukemia.org/blog/2025/7/16/primer-seminario-web-educativo-en-espaol-sobre-leucemia-de-clulas-peludas monthly 0.5 2025-07-29 https://www.hairycellleukemia.org/blog/2025/7/28/first-educational-webinar-in-spanish-on-hairy-cell-leukemia-summary-of-the-spanish-language-educational-webinar-with-dr-jacqueline-barrientos monthly 0.5 2025-07-29 https://www.hairycellleukemia.org/blog/2025/6/30/where-to-start-your-guide-to-the-hclfs-patient-support monthly 0.5 2025-06-30 https://www.hairycellleukemia.org/blog/2025/5/21/celebratingnbsp-asian-american-and-pacific-islander-heritage-month-peters-story monthly 0.5 2025-05-26 https://www.hairycellleukemia.org/blog/2025/5/12/highlights-from-our-march-2025-understanding-hcl-webinar monthly 0.5 2025-05-12 https://www.hairycellleukemia.org/blog/2025/2/2/the-gut-microbiome-and-cancer-treatment-outcomes monthly 0.5 2025-02-02 https://www.hairycellleukemia.org/blog/2024/12/20/ash-2024-spotlight-arons monthly 0.5 2024-12-20 https://www.hairycellleukemia.org/blog/2024/12/17/ash-highlight-transcriptomic-and-epigenomic-landscape-of-hcl-at-single-cell-resolution monthly 0.5 2024-12-20 https://www.hairycellleukemia.org/blog/2024/10/18/cladribine-with-sequential-or-concurrent-rituximab-whats-the-difference monthly 0.5 2024-10-24 https://www.hairycellleukemia.org/blog/2024/10/10/what-is-the-ighv4-34-variant-of-hairy-cell-leukemia monthly 0.5 2024-10-10 https://www.hairycellleukemia.org/blog/2024/9/26/what-is-a-cluster-of-differentiation-cd-and-why-is-it-important-in-hcl monthly 0.5 2024-09-26 https://www.hairycellleukemia.org/blog/2024/9/23/understanding-standard-chemotherapy-in-hairy-cell-leukemia monthly 0.5 2024-09-23 https://www.hairycellleukemia.org/blog/2024/7/16/raising-awareness-of-hcl-variant monthly 0.5 2024-07-17 https://www.hairycellleukemia.org/blog/2024/6/19/clinical-trial-treating-hcl-without-chemo-while-limiting-toxicities monthly 0.5 2024-06-20 https://www.hairycellleukemia.org/blog/2024/5/2/btk-inhibitors-for-classic-hcl-and-hcl-variants monthly 0.5 2024-05-03 https://www.hairycellleukemia.org/blog/2024/4/12/a-braf-new-world-vemurafenib-in-classic-hcl monthly 0.5 2024-04-12 https://www.hairycellleukemia.org/blog/2024/3/8/2024-rare-disease-stories monthly 0.5 2024-03-08 https://www.hairycellleukemia.org/blog/2023/9/17/what-is-the-national-cancer-plan monthly 0.5 2023-09-17 https://www.hairycellleukemia.org/blog/2023/9/7/hcl2025-profile-thorsten-zenz-universittsspital-zurich monthly 0.5 2023-09-07 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1a1b5c55-d652-457d-a3de-b46006cecf86/Thorsten_Zenz.png HCLF Blog - HCL2025 Researcher Profile: Dr. Thorsten Zenz, Universitätsspital Zürich - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hairycellleukemia.org/blog/2023/7/9/hcl2025-researcher-profile-dr-david-ritchie monthly 0.5 2023-07-10 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/9e820d00-6029-4104-8692-114921eb1b51/david_ritchie_profile_2.png HCLF Blog - HCL2025 Researcher Profile: Dr. David Ritchie, University of Melbourne - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hairycellleukemia.org/blog/2023/5/30/hcl2025-profile-dr-reshmi-parameswaran-case-western-reserve-university-school-of-medicine monthly 0.5 2023-07-09 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/8f24eb22-864f-4653-a49c-351a06c449ed/ReshmiParameswaran.jpeg HCLF Blog - HCL2025 Researcher Profile: Dr. Reshmi Parameswaran, Case Western Reserve University School of Medicine - 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What advice would you offer to them or their families?” https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/6cb9e3f4-e96c-4b34-820a-96b8be80bc35/Word+Cloud+Image+Jul+12%2C+2025%2C+10_09_34+PM.png Stories Word‑cloud image based on the Patients’ stories https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/7c23cbfb-f7e4-4dee-801b-86289292c6bd/person+receiving+and+undesrstnding+his+diagnosis+in+doctor%E2%80%99s+office+men+and+elderly.jpg Stories - Patient Stories: Diagnosis “When and how were you first diagnosed with hairy cell leukemia?” https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/d7b1f699-cffa-4a4a-9044-c2187cfba2b1/shutterstock_2604958157.jpg Stories - Patient Stories: HCL Treatment “What treatments did you receive and how did you respond to treatment How would you describe your experience and the steps you took to decide which treatment to use?” https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/88e39e4c-5426-4fcc-9a89-cc9682f60335/Relapse+and+keep+walking+2.jpg Stories - Patient Stories: Relapse “Can you describe your experience with relapse?” https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/d9b0c7a6-eb5b-40b0-b058-39a7dc4e38f5/support+stories+diverse+women.jpg Stories - Patient Stories: Support and Coping “How have you built a support network? Where have you turned for connections, advice, and support?” https://www.hairycellleukemia.org/home daily 1.0 2026-01-27 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1540496783691-29SKQ9IXZ44LWPT4EMXT/image-asset.jpeg Home https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/0e28beb6-2ad1-43e1-93e5-28621b16d7e4/linktree_version.jpg Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/4bab9959-3705-44c0-bbe2-26185c5abd4e/couple_familysupport.jpg Home - Find Information and Support Photo by didesign021/iStock / Getty Images https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/188e9426-b842-45cd-9d8f-a2f816c7777b/calendar.jpg Home - Register for Programs We host educational webinars, peer-to-peer forums, and other meetings throughout the year. HCLF staff or volunteers facilitate these meetings to empower patients with evidence-based information and help them build a strong network of support. https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/72f13c13-8157-4e76-8902-a222a78af1aa/women_webinar.jpg Home - View Archived Programs Did you miss a webinar or expert presentation or want to revisit content? We archive recordings and transcripts from most educational programs for patients. https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/2c70b986-0231-4f00-9c5a-42d32d1f6289/scientific_journals.jpg Home - Visit our Digital Library We fund promising research to strengthen our shared understanding of hairy cell leukemia and improve outcomes for patients with this disease. Many research grantees have published their findings in leading journals, advancing knowledge of HCL and bringing us closer to a cure. https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1564666278008-WWAKFGKYJBZFV4EVV60Z/image-asset.jpeg Home - Find an HCL Expert We have developed a network of HCL Centers of Excellence where healthcare professionals are working to advance understanding and improve patient outcomes. We encourage patients to seek treatment at these centers and we frequently turn to these experts for assistance. https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/22c9180b-0f3f-4058-9e86-f1cc5260647e/2024+Annual+Report.png Home - 2024 Annual Report Photo by utah778/iStock / Getty Images https://www.hairycellleukemia.org/about-us daily 0.75 2026-03-31 https://www.hairycellleukemia.org/published-research daily 0.75 2025-02-19 https://www.hairycellleukemia.org/research daily 0.75 2026-02-24 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1564935180839-YP4USZFEZU19HHK1KH6Y/image-asset.jpeg Research https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1540486008285-TWUOTVZZCV6YL1UBP5DI/group_photo_investigator_conf.jpg Research 2017 HCL Conference: Scientific Sessions held at The Ohio State University, USA https://www.hairycellleukemia.org/2018-patient-seminar-new-york-ny daily 0.75 2024-03-18 https://www.hairycellleukemia.org/2017-patient-seminar-columbus-oh daily 0.75 2024-03-18 https://www.hairycellleukemia.org/2015-patient-seminar-chicago-il-usa daily 0.75 2024-03-18 https://www.hairycellleukemia.org/2014-patient-seminar-london-england daily 0.75 2024-03-18 https://www.hairycellleukemia.org/2014-patient-seminar-houston-tx daily 0.75 2024-03-18 https://www.hairycellleukemia.org/2013-patient-seminar-new-york-ny daily 0.75 2024-03-18 https://www.hairycellleukemia.org/support-patients daily 0.75 2026-02-12 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/b906b47d-fc39-4677-82b2-3c3d3eef3484/man_webinar.jpg Patient Support - Educational Webinars Educational Webinars The HCLF hosts regular webinars during which hematologists and researchers from HCL Centers of Excellence provide an expert overview of HCL diagnosis, current treatment and clinical trials. Learn more. >> https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/73cdcf90-8d12-49aa-8beb-3e222e32bec3/couple_familysupport.jpg Patient Support - Community Roundtables Community Roundtables Community Roundtables are forums on Zoom providing peer-to-peer support to patients and their families. Each roundtable is facilitated by HCLF staff, board members and volunteers. Learn more. >> https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1710790884324-B9I5QGDWB8UK2RXCG7YA/image-asset.jpeg Patient Support - Patient Seminars Patient Seminars The HCLF regularly hosts a full-day seminar, connecting patients and families with expert speakers and informative panel discussions, and unparalleled opportunities for networking with patients who have similar experiences. Learn more. >> https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1710795061262-TWV42Q2TMQJRXNX2LAKJ/GettyImages-1057818480.jpg Patient Support - Ask an Expert This program from HCLF offers facts, resources, and referrals to help patients make informed health care choices. Submit a question >> https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/40ea2f53-e3bf-4544-8ebf-bd2bd4c1c2ef/patienttoolkit_image.jpg Patient Support - Questions to Ask Your Doctor We have gathered key questions to help you talk with your hematologist. These questions can help you learn more about your diagnosis, know when to start treatment, manage side effects, and maintain your quality of life. View our patient toolkit >> https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/188e9426-b842-45cd-9d8f-a2f816c7777b/calendar.jpg Patient Support - Program Calendar Program Calendar Visit our program calendar to register for current webinars and forums. Calendar >> https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1710796929979-EXYMBZ1TKCC1USRPDTO8/registry_image.jpg Patient Support - HCL Patient Data Registry HCL Patient Data Registry You can help bridge gaps in HCL research and contribute to important discoveries that may improve care for all patients. Learn more >> https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/bde75017-5679-4c7c-ad74-c6306c3f8ff6/Researcher_Lab.jpg Patient Support - Clinical Trials Clinical trials are carefully controlled research studies that can help improve HCL treatment and quality of life for patients. Learn about clinical trials >> https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/8fdf1ff8-934b-46e0-a954-3d1036c25233/women_group.jpg Patient Support - Women’s Group HCLF Women’s Group We launched the women’s group in 2020 to help women with HCL build and strengthen their network of support, supporting each other through diagnosis and treatment. The group is led by board members and volunteers and hosts regular webinars and peer-to-peer support meetings. Learn more. >> https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/2963991f-bdc8-44cd-b1e2-4f96f10328da/older-hispanic-couple.jpg Patient Support - Hispanic and Latino Families Outreach to Hispanic & Latino HCL Patients and Families The impact of HCL can vary among patients, including within the Hispanic and Latino communities. To strengthen information and services, we are developing programs to support Hispanic and Latino individuals with HCL and their family members better. Learn more. >> https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1711144803112-405QH32KPT00H53SM1K9/GettyImages-1180524445.jpg Patient Support - Online Patient Community No matter if you are newly diagnosed, in remission, or have relapsed, connecting with others who have similar experiences can be helpful. The online community lets you ask questions and talk with other patients. Join the online community >> https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/2c70b986-0231-4f00-9c5a-42d32d1f6289/scientific_journals.jpg Patient Support - Visit our Digital Library We fund promising research to strengthen our shared understanding of HCL, develop new treatments, and improve outcomes for patients. Many HCLF grantees have published their findings in leading journals, advancing knowledge of HCL and bringing us closer to a cure. We maintain an archive of published HCL research on our website. https://www.hairycellleukemia.org/centers-of-excellence daily 0.75 2025-12-09 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1540497982410-KXQKN0JPMRGT7W05KZ18/image-asset.jpeg Centers of Excellence https://www.hairycellleukemia.org/transcript-july-17-2019-forum daily 0.75 2021-09-17 https://www.hairycellleukemia.org/hairy-cell-leukemia daily 0.75 2025-05-14 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1564940198863-6ZSO5X5VVL4D2VENBSWF/image-asset.jpeg About HCL https://www.hairycellleukemia.org/march-2019-patient-webinar daily 0.75 2024-03-08 https://www.hairycellleukemia.org/september-2019-webinar-materials-and-transcript daily 0.75 2024-03-08 https://www.hairycellleukemia.org/share-your-story daily 0.75 2025-09-12 https://www.hairycellleukemia.org/october-2019-webinar-materials daily 0.75 2024-03-08 https://www.hairycellleukemia.org/november-2019-patient-forum-materials daily 0.75 2020-07-28 https://www.hairycellleukemia.org/march-2020-webinar-materials daily 0.75 2024-03-08 https://www.hairycellleukemia.org/april-2020-webinar daily 0.75 2024-03-08 https://www.hairycellleukemia.org/women daily 0.75 2026-03-23 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/be811e45-a236-42e3-aeee-f1e778c1e078/women_group.jpg Women and Hairy Cell Leukemia - Make it stand out Women’s Group Roundtable The Women’s Group roundtable brings together women with HCL from around the world to share experiences, ask questions, and offer peer-to-peer support. Women’s group roundtables occur every two months. Upcoming meetings May 6th - 12:30 pm eastern REGISTER >> July 1st - 1 pm eastern REGISTER >> https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/72f13c13-8157-4e76-8902-a222a78af1aa/women_webinar.jpg Women and Hairy Cell Leukemia - Make it stand out Webinars The HCLF Women’s Group steering committee identifies topics each year of particular interest to women with HCL and organizes occasional webinars to engage women in discussions. Coping Well With Chronic Illness - June 9, 2023 Presenter: Emily Blackmer, MSW, LGSW, Mayo Clinic, Rochester, MN View webinar materials. Gender and Patient Outcomes in HCL, An HCL Patient Data Registry Analysis - March 24, 2023 Presenters: Dr. Leslie Andritsos, The University of New Mexico and Dr. Naren Epperla, The Ohio State University. View webinar materials. Role of Integrative Oncology in Cancer Care - May 16, 2022 Speaker: Smitha Mallaiah, MSc, C-IAYT, Sr. Mind-Body Interventions Specialist, University of Texas, MD Anderson Cancer Center View a program summary. >> https://www.hairycellleukemia.org/may-2020-webinar daily 0.75 2024-03-08 https://www.hairycellleukemia.org/july-2020-webinar daily 0.75 2024-03-08 https://www.hairycellleukemia.org/hcl-webinars-2019 daily 0.75 2024-03-18 https://www.hairycellleukemia.org/2019-regional-meetings daily 0.75 2023-02-07 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1600048102230-FSMI2XQLRUFV9OOHB2WZ/image-asset.jpeg 2019 Regional Meetings https://www.hairycellleukemia.org/online-patient-community daily 0.75 2024-07-24 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1600050713036-P8YCT4Q3TGF4QE6IRTHE/online_community_banner.jpg Online Patient Community https://www.hairycellleukemia.org/hcl2025 daily 0.75 2026-02-12 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1604282812513-4KPE8GQQ5HCC8VI28GO9/hairycells.jpg HCL2025 https://www.hairycellleukemia.org/october-2020-webinar daily 0.75 2024-03-18 https://www.hairycellleukemia.org/december-2020-webinar daily 0.75 2024-03-08 https://www.hairycellleukemia.org/february-2021-hcl-webinar daily 0.75 2024-03-08 https://www.hairycellleukemia.org/april-2021-webinar daily 0.75 2024-03-08 https://www.hairycellleukemia.org/may2021-webinar daily 0.75 2024-03-08 https://www.hairycellleukemia.org/may-2021-webinar-for-women daily 0.75 2024-03-08 https://www.hairycellleukemia.org/clinicaltrials daily 0.75 2025-02-14 https://www.hairycellleukemia.org/2021seminar daily 0.75 2024-03-18 https://www.hairycellleukemia.org/august-2021-webinar daily 0.75 2024-03-08 https://www.hairycellleukemia.org/covid daily 0.75 2021-09-22 https://www.hairycellleukemia.org/internship daily 0.75 2021-09-17 https://www.hairycellleukemia.org/conference daily 0.75 2021-10-06 https://www.hairycellleukemia.org/oct-10-2021-webinar daily 0.75 2021-11-29 https://www.hairycellleukemia.org/oct-2021-panel daily 0.75 2021-11-29 https://www.hairycellleukemia.org/oct-11-2021-webinar daily 0.75 2024-03-08 https://www.hairycellleukemia.org/oct-12-2021-webinar daily 0.75 2024-03-08 https://www.hairycellleukemia.org/nov2021-webinar daily 0.75 2024-03-14 https://www.hairycellleukemia.org/2021-webinars daily 0.75 2024-03-08 https://www.hairycellleukemia.org/2020-webinars daily 0.75 2024-03-08 https://www.hairycellleukemia.org/feb-2022-webinar daily 0.75 2024-03-18 https://www.hairycellleukemia.org/march-2022-forum daily 0.75 2022-05-04 https://www.hairycellleukemia.org/may-2022-hcl-webinar daily 0.75 2024-03-18 https://www.hairycellleukemia.org/may-2022-webinar-for-women daily 0.75 2024-03-18 https://www.hairycellleukemia.org/june-2022-forum daily 0.75 2022-07-22 https://www.hairycellleukemia.org/august-2022-webinar daily 0.75 2024-03-18 https://www.hairycellleukemia.org/2022conference daily 0.75 2022-10-25 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1663961734057-1C020MHG7K94OFPTE28N/2022+HCLF+conference+banner.png HCLF 2022 Conference: Sessions for Doctors and Investigators https://www.hairycellleukemia.org/july-2022-forum daily 0.75 2022-09-27 https://www.hairycellleukemia.org/october-2022-qol-webinar daily 0.75 2024-03-18 https://www.hairycellleukemia.org/utah-2022meetup daily 0.75 2022-11-28 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1540500775302-VX6000HYB9AMR8BROJNG/image-asset.jpeg Utah Regional Meetup Registration https://www.hairycellleukemia.org/december-2022-panel daily 0.75 2024-03-18 https://www.hairycellleukemia.org/2022-webinars daily 0.75 2024-03-08 https://www.hairycellleukemia.org/2022-regional-meetings daily 0.75 2023-02-07 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1600048102230-FSMI2XQLRUFV9OOHB2WZ/image-asset.jpeg 2022 Regional Meetings https://www.hairycellleukemia.org/webinars daily 0.75 2026-03-27 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/8f7a9590-9ba1-4338-85ab-ba154b7a4953/man_webinar.jpg Webinars - Understanding Hairy Cell Leukemia Series We host a regular webinar where hematologists and researchers from HCL Centers of Excellence provide an expert overview of HCL. Previous webinars Dr. Robert Kreitman, NCI View webinar recording >> Past webinars (2019-2025) View >> https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/bde75017-5679-4c7c-ad74-c6306c3f8ff6/Researcher_Lab.jpg Webinars - HCL Clinical Trials Series Through this series, we aim to educate our patient network about current trials in hairy cell leukemia and empower them with options. Past clinical trials webinars (2025) Dr. Jae Park, Memorial Sloan Kettering Materials >> Past webinars (2024) Dr. David Hermel, Scripps Clinic Materials >> Dr. Robert Kreitman, NIH-NCI Materials >> https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1743453725068-Y53NDZTMW0S8CUI1EJQL/image-asset.jpeg Webinars - What’s New in HCL Series When new HCL research is published, we invite the primary investigator to present their study results during a webinar. Patients and families impacted by HCL have the unique and exciting opportunity to ask questions directly to the investigator who conducted the research. Past webinars in this series Gender and Patient Outcomes in HCL, 2023 Materials >> Initial Results from a Health–Related QOL Study, 2022 Materials >> Ibrutinib in Classic and Variant HCL, 2021 Materials >> Vemurafenib + Rituximab in Relapsed or Refractory HCL, 2021 Materials >> https://www.hairycellleukemia.org/regional-meetings daily 0.75 2023-11-07 https://www.hairycellleukemia.org/coffee-chats daily 0.75 2023-10-10 https://www.hairycellleukemia.org/feb-2023-webinar daily 0.75 2024-03-18 https://www.hairycellleukemia.org/march-2023-female-patients-webinar daily 0.75 2024-03-18 https://www.hairycellleukemia.org/committees daily 0.75 2025-01-12 https://www.hairycellleukemia.org/june2023-womens-group-webinar daily 0.75 2024-03-18 https://www.hairycellleukemia.org/2023conference daily 0.75 2023-10-09 https://www.hairycellleukemia.org/2023seminar daily 0.75 2024-03-18 https://www.hairycellleukemia.org/november-2023-webinar daily 0.75 2024-03-18 https://www.hairycellleukemia.org/september-2023-webinar daily 0.75 2024-03-18 https://www.hairycellleukemia.org/2023-webinars daily 0.75 2024-04-18 https://www.hairycellleukemia.org/february-2024-webinar daily 0.75 2024-03-29 https://www.hairycellleukemia.org/roundtables daily 0.75 2026-04-02 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/4bab9959-3705-44c0-bbe2-26185c5abd4e/couple_familysupport.jpg Roundtables - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hairycellleukemia.org/patient-seminars daily 0.75 2026-01-12 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/1710965130997-RH2YUOX1QFEXBZDY8TNJ/image-asset.jpeg Patient Seminars - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hairycellleukemia.org/organizations daily 0.75 2024-03-20 https://www.hairycellleukemia.org/disclaimer daily 0.75 2024-03-23 https://www.hairycellleukemia.org/contact daily 0.75 2025-04-09 https://www.hairycellleukemia.org/may-2024-clinical-trials-nci daily 0.75 2024-05-07 https://www.hairycellleukemia.org/may-2024-clinical-trials-scripps daily 0.75 2024-06-11 https://www.hairycellleukemia.org/2024seminar daily 0.75 2024-11-04 https://www.hairycellleukemia.org/june-2024-hcl-variant-webinar daily 0.75 2024-07-03 https://www.hairycellleukemia.org/hispanicoutreach daily 0.75 2026-03-31 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/7f03d91c-aeed-49d1-935d-4f5f1e8ce16b/shutterstock_asset-generation-832d1cb0-10cb-44d7-9238-444053e80af2-1_edited.jpeg Hispanic and Latino Outreach - Community Roundtables in Spanish Roundtables are moderated discussions on Zoom that provide peer-to-peer support to patients with HCL and their families. Each roundtable meeting is facilitated by HCLF staff and volunteers. Upcoming Saturday, June 6, 2026 Register here >> https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/738ab97c-ddf8-47eb-a0b9-69355ece4a96/shutterstock_1972255586-Doctor.jpg Hispanic and Latino Outreach - Educational Webinars in Spanish We host a regular webinar where hematologists with significant expertise in this rare disease provide an overview of HCL diagnosis and treatment. In May 2025, we hosted our first educational webinar in Spanish with Dr. Jacqueline Barrientos from Mount Sinai Medical Center in Miami. https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/8f37098c-e04e-459c-97bb-5281db3de2d9/shutterstock_1687244551.jpg Hispanic and Latino Outreach - Your Stories Matter The impact of HCL varies among patients and their families, including in the Hispanic & Latino communities. In late 2024, the HCLF conducted in-depth interviews with Hispanic & Latino HCL patients and families to better understand their unique challenges, unmet needs, and lived experiences. Through these conversations, we have learned valuable insights that will continue to shape our programs and services. We extend heartfelt appreciation to everyone who participated in the in-depth interviews. Thank you! https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/a34d03fe-b7e0-4530-861e-81cb321ace9d/Dr+Bertha+Bouroncle.jpeg Hispanic and Latino Outreach - Honoring the Legacy of Hispanics & Latinos in HCL: Dr. Bertha Bouroncle Dr. Bertha Bouroncle was born in Peru in September 1919. She was the only female in her 1947 medical school graduating class. After completing her medical studies in Peru, Dr. Bouroncle moved to the United States for postgraduate training, spending much of her career as faculty at The Ohio State University in Columbus. There, she made history in 1958 by first identifying Hairy Cell Leukemia (HCL). Bouroncle worked closely with Drs. Michael Grever and Eric Kraut to develop pentostatin, one of the first effective treatments for HCL. Pentostatin has helped to transform HCL, a once fatal blood cancer, into a highly treatable one, allowing most patients with HCL to have a relatively normal life span. https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/f6236b4d-353d-4e1b-8025-df6805e62f04/community+2.jpg Hispanic and Latino Outreach - Connect with us! We encourage patients and families to contact the Hairy Cell Leukemia Foundation (HCLF)’s outreach staff for support and information. Carlos Guerrero, Director of Multicultural Engagement Email Carlos >> https://www.hairycellleukemia.org/2024-seminar-columbus daily 0.75 2025-01-21 https://www.hairycellleukemia.org/patient-advisory-committee daily 0.75 2025-02-27 https://www.hairycellleukemia.org/march-2025-webinar daily 0.75 2025-03-27 https://www.hairycellleukemia.org/understanding-hcl-webinar-series daily 0.75 2026-02-12 https://www.hairycellleukemia.org/hispanicoutreach-espanol daily 0.75 2026-03-31 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/7f03d91c-aeed-49d1-935d-4f5f1e8ce16b/shutterstock_asset-generation-832d1cb0-10cb-44d7-9238-444053e80af2-1_edited.jpeg Hispanic and Latino Outreach Spanish Version - Mesas Redondas Comunitarias en Español Las mesas redondas son conversaciones moderadas vía Zoom que brindan apoyo entre pares a pacientes con tricoleucemia y a sus familias. Cada sesión es facilitada por el personal y los voluntarios de HCLF. Próxima sesión: Sábado 6 de junio, 2026 Regístrese aquí >> https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/738ab97c-ddf8-47eb-a0b9-69355ece4a96/shutterstock_1972255586-Doctor.jpg Hispanic and Latino Outreach Spanish Version - Seminarios Web Educativos en Español Organizamos seminarios web periódicos en los que hematólogos con amplia experiencia en esta enfermedad presentan una visión general del diagnóstico y tratamiento de la HCL. En mayo de 2025, organizamos nuestro primer seminario web educativo en español con la Dra. Jacqueline Barrientos del Mount Sinai Medical Center en Miami. https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/8f37098c-e04e-459c-97bb-5281db3de2d9/shutterstock_1687244551.jpg Hispanic and Latino Outreach Spanish Version - Tu Historia Importa El impacto de la LCP varía entre pacientes y sus familias, incluyendo a las comunidad hispanas y latina. A finales de 2024, la HCLF llevó a cabo entrevistas en profundidad con pacientes hispanos y latinos con HCL y sus familias, para comprender mejor sus desafíos únicos, necesidades no cubiertas y experiencias de vida. A través de estas conversaciones, hemos obtenido valiosos aprendizajes que seguirán guiando nuestros programas y servicios. Expresamos nuestro más sincero agradecimiento a todas las personas que participaron en estas entrevistas en profundidad. ¡Gracias! ¡Anímate a compartir tu historia aquí! >> CLICK https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/a34d03fe-b7e0-4530-861e-81cb321ace9d/Dr+Bertha+Bouroncle.jpeg Hispanic and Latino Outreach Spanish Version - Honrando el Legado de Hispanos y Latinos en HCL: Dra. Bertha Bouroncle Dra. Bertha Bouroncle nació en Perú en septiembre de 1919. Fue la única mujer en su clase de graduación de medicina en 1947. Tras completar sus estudios médicos en Perú, la Dra. Bouroncle se trasladó a los Estados Unidos para realizar su formación de postgrado, y pasó gran parte de su carrera como profesora en The Ohio State University, en Columbus. Allí, hizo historia en 1958 al identificar por primera vez la leucemia de células peludas. Bouroncle trabajó estrechamente con los doctores Michael Grever y Eric Kraut para desarrollar la pentostatina, uno de los primeros tratamientos eficaces para la LCP. La pentostatina ha contribuido a transformar la LCP, un cáncer de la sangre que antes era mortal, en una enfermedad altamente tratable, permitiendo que la mayoría de los pacientes con LCP tengan una esperanza de vida relativamente normal. https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/f6236b4d-353d-4e1b-8025-df6805e62f04/community+2.jpg Hispanic and Latino Outreach Spanish Version - Contáctanos! Invitamos a los pacientes y sus familias a comunicarse con el equipo de participacion comunitaria de la Hairy Cell Leukemia Foundation para recibir apoyo e información. Carlos Guerrero, Director de Participación Multicultural Email Carlos >> https://www.hairycellleukemia.org/clinical-trials-jae-park-april-2025 daily 0.75 2026-03-16 https://www.hairycellleukemia.org/donate daily 0.75 2025-12-09 https://www.hairycellleukemia.org/may-2025-understanding-hcl-webinar daily 0.75 2025-06-30 https://www.hairycellleukemia.org/hcl2030 daily 0.75 2026-02-12 https://www.hairycellleukemia.org/patient-toolkit daily 0.75 2026-01-22 https://images.squarespace-cdn.com/content/v1/5bb50ceeb10f2511ae4cfb96/bf816e11-6c22-4bc4-8323-eb06535832da/Questions+for+Doctor+3.jpg Patient Toolkit - Questions to Ask Your Doctor We want to support you and your loved ones through every step of your experience with HCL. The patient toolkit is here to help you take an active role in your HCL treatment and decisions with confidence. Many newly diagnosed patients say to us, “What should I ask my doctor?” The toolkit will help guide your talks with your healthcare providers, whether you are newly diagnosed, in remission, or focusing on your long-term health. Below, you can scroll through and download questions. https://www.hairycellleukemia.org/2024report daily 0.75 2025-09-04 https://www.hairycellleukemia.org/40years-press-release daily 0.75 2025-09-10 https://www.hairycellleukemia.org/hcl2030-release daily 0.75 2025-09-22 https://www.hairycellleukemia.org/august-2025-hcl-webinar daily 0.75 2025-10-08 https://www.hairycellleukemia.org/2025-patient-seminar daily 0.75 2025-12-30 https://www.hairycellleukemia.org/2025-seminar-session-understandinghealthinsurance daily 0.75 2025-12-01 https://www.hairycellleukemia.org/2025-seminar-session-nci-clinical-trials daily 0.75 2025-12-01 https://www.hairycellleukemia.org/2025-seminar-session-hcl-patient-data-registry daily 0.75 2025-12-01 https://www.hairycellleukemia.org/2025-seminar-session-understanding-hcl daily 0.75 2025-11-30 https://www.hairycellleukemia.org/2025-seminar-session-diet-and-nutrition daily 0.75 2026-01-22 https://www.hairycellleukemia.org/2025-seminar-session-mental-health daily 0.75 2025-12-01 https://www.hairycellleukemia.org/2025-seminar-session-expert-panel daily 0.75 2026-01-12 https://www.hairycellleukemia.org/march-2026-hcl-webinar daily 0.75 2026-03-27