Our Mission and History
The Hairy Cell Leukemia Foundation (HCLF) is the only nonprofit organization in the United States dedicated to Hairy Cell Leukemia (HCL). The HCLF improves patient outcomes by funding research, advancing knowledge about HCL among hematologists, and providing patients access to educational resources and peer-to-peer support.
In 1985, a group of HCL patients in Illinois formed a support group and established it as a 501c3 nonprofit called the Hairy Cell Leukemia Research Foundation. Twenty years later, a second group of patients wanted to explore strategies to advance HCL research further. They convened leading hematologists and HCL experts worldwide and formed the Hairy Cell Leukemia Research Consortium, emphasizing scientific research. These two groups joined forces, bringing together the core competencies of each organization. Today, the Hairy Cell Leukemia Foundation is well-positioned to continue moving the needle in research and discovery and positively impact patients.
HCLF board members are HCL survivors and advocates and HCLF programs are designed and implemented with patient input. An advisory board composed of hematologists from among the best cancer centers in the world continues to provide clinical expertise for our patient education programs and research initiatives.
Our Leadership
Board of Directors and Executive Staff
2024 Board of Directors
Keith Markbreiter, President (California)
Dr. Michael Margolin, Vice President (New Jersey)
Adi Weber, Vice President (New York)
Kenneth Jensen, Treasurer (Illinois)
Marc Stadtmauer, Secretary (New York)
Brian P. Friedman (New York)
Tim Maher (Tennessee)
Sarah Naperala (Michigan)
Bobby Patrick (Virginia)
Scott Svoboda (Illinois)
Dr. Kirk Zachary (New York)
Director Emeritus
Earl J. Stone (Illinois)
Executive Director
Anna T. Lambertson (California)
Scientific Advisory Committee
Scientific Advisory Committee Chair
Dr. Michael Grever - The Ohio State University Comprehensive Cancer Center-The James, USA
Scientific Advisory Committee Members
Dr. James Johnston - Manitoba Institute of Cell Biology
Dr. Robert J. Kreitman - National Cancer Institute, NIH
Dr. Tamar Tadmor - Bnai-Zion Medical Center, Israel
Dr. Martin Tallman - Chicago, IL
Dr. Enrico Tiacci - University and Hospital of Perugia
Dr. Bernhard Wörmann - The Charité – Universitätsmedizin Berlin
Dr. Clive Zent - James P. Wilmot Cancer Institute, University of Rochester Medical Center
Contact Us
HCLF staff and volunteers work collaboratively from remote offices in the US.
Mail should be addressed to:
Hairy Cell Leukemia Foundation
77 Van Ness Ave Ste 101 #1617
San Francisco, CA 94102
Office Phone: +1.224.355.7201
General Email: info@hairycellleukemia.org
Mail continues to be monitored at our NYC mailbox:
82 Nassau St. #343
New York, NY 10038