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2025 Hairy Cell Leukemia (HCL) Patient Seminar
In November 2025, the HCLF hosted an online, two-day seminar. The meeting brought together patients and families to learn about a range of important topics with experts in HCL, nutrition, and emotional well-being.
Below, we have outlined each day of the seminar and provided links to recorded sessions. Additional resources will be added to this page as they are available. We have also linked here a Glossary of terms with brief definitions of frequently used terms related to HCL.
Deepening Your Knowledge of Hairy Cell Leukemia
Day One of the HCL Patient Seminar focused on the symptoms of HCL, how doctors make an accurate diagnosis, effective treatments, and research and clinical trials that help us improve treatment and introduce new therapies.
LIVE SESSIONS
Understanding Hairy Cell Leukemia
Speaker: Dr. Kerry Rogers, The Ohio State University
View the recorded session here >>
Research Frontiers in HCL
Panelists: Dr. Michael Grever and Dr. Kerry Rogers, The Ohio State University; Dr. Jae Park, Memorial Sloan Kettering Cancer Center; and Dr. Sameer Parikh, Mayo Clinic
A formatted recording of this session is being prepared and will be shared as soon as it is available.
PRE-RECORDED SESSIONS
Clinical Trials at the National Cancer Institute (NCI), NIH
Pre-recorded session hosted by the Hairy Cell Leukemia Foundation with guest speaker Dr. Robert J. Kreitman from the National Cancer Institute (NCI), NIH.
View the recorded session here >>
Hairy Cell Leukemia (HCL) Patient Data Registry
Pre-recorded session hosted by the Hairy Cell Leukemia Foundation with guest speaker Dr. Mirela Anghelina from the Ohio State University. Dr. Anghelina discusses the HCL patient data registry, including how patients can join, studies underway using the data, and efforts to expand participating sites.
Living with Hairy Cell Leukemia
Day Two of the HCL Patient Seminar focused on tips and skills to support good nutrition and emotional health and well-being.
LIVE SESSIONS
NUTRITION AND DIET FOR HCL PATIENTS
Speaker: Kelly Dunn, University of New Mexico Cancer Center
Topics: Evidence-based nutritional guidance for patients; food safety
View the recorded session here >>
MENTAL HEALTH AND EMOTIONAL RESILIENCE
Speaker: Emily Blackmer, Mayo Clinic
Topics: Coping, identity, emotional well being
View the recorded session here >>
PRE-RECORDED SESSIONS
Understanding Health Insurance to Reduce Financial Toxicity
Pre-recorded session hosted by the Hairy Cell Leukemia Foundation in collaboration with Triage Cancer, a national, nonprofit organization that provides free education on the legal and practical issues that may impact individuals diagnosed with cancer and their caregivers.
Speaker: Kathryn Strobach, Triage Cancer