This meeting is in the past.

The HCL Variant roundtable is a welcoming space for people with the variant form of HCL and their network to share experiences, answer questions, and support each other.

We do not share recordings of community roundtables.

Learn more and register for upcoming community roundtables.

This meeting is in the past.

The HCLF Women’s Group roundtable brings together women with HCL to share experiences and offer peer-to-peer support. We do not share recordings of community roundtables.

This meeting is in the past.

The Clinical Trials roundtable is a welcoming space for people with HCL and their support network to learn about HCL clinical trials from other patients. During each roundtable, one or more patients who have joined trials will share their experiences and answer questions. Through these roundtables, we hope to raise awareness of opportunities to make a difference in research by participating in these trials.

We do not share recordings of community roundtables.

Learn more and register for upcoming community roundtables.

This meeting is in the past.

The HCLF does not share recordings of community roundtables in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What are Community Roundtables?

Roundtables are forums on Zoom providing peer-to-peer support to patients and their families. Each roundtable is moderated by HCLF staff, board members, or volunteers. We request respectful conversation and an open mind to ensure a positive environment for all participants.

Learn more about community roundtables. >>

This meeting is in the past.

The HCLF does not share recordings of HCL coffee chats in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What are HCL Coffee Chats?

HCL Coffee Chats are supportive group meetings for patients and their families. During HCL coffee chats, patients can share their stories and experiences and offer important encouragement and support to others. Coffee chats are moderated by HCLF volunteers, board members, and staff and promote respectful dialogue and connection. They do not include a slide presentation. These meetings are open to anyone, regardless of location, and are hosted on Zoom.

This meeting is in the past.

The HCLF hosts a quarterly webinar during which hematologists and researchers from HCL Centers of Excellence provide an expert overview of HCL diagnosis, current treatment and clinical trials. People with HCL and their families are encouraged to register, listen and learn about this rare blood cancer and their options. These webinars are open to everyone, regardless of location.

On February 29, 2024, Dr. Tim Call from the Mayo Clinic was our guest speaker.

You can view webinar materials on our website. >>

This meeting is in the past.

The HCLF does not share recordings of community roundtables in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What are Community Roundtables?

Roundtables are forums on Zoom providing peer-to-peer support to patients and their families. Each roundtable is moderated by HCLF staff, board members, or volunteers. We request respectful conversation and an open mind to ensure a positive environment for all participants.

Learn more about community roundtables. >>

This meeting is in the past.

The HCLF does not share recordings of HCL coffee chats in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What are HCL Coffee Chats?

HCL Coffee Chats are supportive group meetings for patients and their families. During HCL coffee chats, patients can share their stories and experiences and offer important encouragement and support to others. Coffee chats are moderated by HCLF volunteers, board members, and staff and promote respectful dialogue and connection. They do not include a slide presentation. These meetings are open to anyone, regardless of location, and are hosted on Zoom.

This meeting is in the past.

The HCLF does not share recordings of these meetups in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What is the HCLF Women’s Group?

The HCLF Women’s Group provides peer-to-peer support to women with HCL and their families. The group is led by a steering committee composed of women with HCL, HCLF staff, and board members. Meetings are held throughout the year for women, including roundtable discussions and occasional webinars on topics selected by the steering committee. These meetings are open to all women impacted by HCL anywhere in the world!

This meeting is in the past.

The HCLF hosts a quarterly webinar during which leading hematologists and researchers from HCL Centers of Excellence provide an expert overview of HCL diagnosis, current treatment and clinical trials. People with HCL and their families are encouraged to register, listen and learn about this rare blood cancer and their options. These webinars are open to everyone, regardless of location.

In November 2023, Dr. Robert Kreitman from the NIH was our guest speaker.

You can view materials from this webinar on the HCLF website here. >>

This meeting is in the past.

The HCLF does not share recordings of regional meetups in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

This meeting is in the past.

The patient seminar is an annual hybrid meeting hosted by the HCLF. In 2023, the patient seminar was held in London, UK. Some patients and their families participated in person in London and others joined by Zoom from around the world. Dr. Claire Dearden and Dr. Dima El-Sharkawi, both from the Royal Marsden Hospital, spoke to seminar participants and answered questions.

Materials from portions of the seminar are available on the HCLF website here. >>

Please note: In addition to slide presentations from Drs. Dearden and El-Sharkawi, the seminar included a panel discussion. A recording of the panel will not be posted.

This meeting is in the past.

The HCLF does not share recordings of HCL coffee chats in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What are HCL Coffee Chats?

HCL Coffee Chats are supportive group meetings for patients and their families. During HCL coffee chats, patients can share their stories and experiences and offer important encouragement and support to others. Coffee chats are moderated by HCLF volunteers, board members, and staff and promote respectful dialogue and connection. They do not include a slide presentation. These meetings are open to anyone, regardless of location, and are hosted on Zoom.

This meeting is in the past.

The HCLF does not share recordings of these meetups in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What is the HCLF Women’s Group?

The HCLF Women’s Group provides peer-to-peer support to women with HCL and their families. The group is led by a steering committee composed of women with HCL, HCLF staff, and board members. Meetings are held throughout the year for women, including roundtable discussions and occasional webinars on topics selected by the steering committee. These meetings are open to all women impacted by HCL anywhere in the world!

This meeting is in the past.

The HCLF hosts a quarterly webinar during which leading hematologists and researchers from HCL Centers of Excellence provide an expert overview of HCL diagnosis, current treatment and clinical trials. People with HCL and their families are encouraged to register, listen and learn about this rare blood cancer and their options. These webinars are open to everyone, regardless of location.

In September 2023, Dr. Kerry Rogers from the Ohio State University was our guest speaker.

You can view materials from this webinar here. >>

This meeting is in the past.

The HCLF does not share recordings of HCL coffee chats in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What are HCL Coffee Chats?

HCL Coffee Chats are supportive group meetings for patients and their families. During HCL coffee chats, patients can share their stories and experiences and offer important encouragement and support to others. Coffee chats are moderated by HCLF volunteers, board members, and staff and promote respectful dialogue and connection. They do not include a slide presentation. These meetings are open to anyone, regardless of location, and are hosted on Zoom.

This meeting is in the past.

The HCLF does not share recordings of these meetups in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What is the HCLF Women’s Group?

The HCLF Women’s Group provides peer-to-peer support to women with HCL and their families. The group is led by a steering committee composed of women with HCL, HCLF staff, and board members. Meetings are held throughout the year for women, including roundtable discussions and occasional webinars on topics selected by the steering committee. These meetings are open to all women impacted by HCL anywhere in the world!

This meeting is in the past.

Materials from this program can be viewed on the HCLF website. >>

What is the HCLF Women’s Group?

The HCLF Women’s Group provides peer-to-peer support to women with HCL and their families. The group is led by a steering committee composed of women with HCL, HCLF staff, and board members. Meetings are held throughout the year for women, including roundtable discussions and occasional webinars on topics selected by the steering committee. These meetings are open to all women impacted by HCL anywhere in the world!

This meeting is in the past.

The HCLF does not share recordings of regional meetups in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

This meeting is in the past.

The HCLF does not share recordings of regional meetups in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

This meeting is in the past.

Materials from this meeting are not currently available.

This meeting is in the past.

The HCLF does not share recordings of regional meetups in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

This meeting is in the past.

The HCLF does not share recordings of regional meetups in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

A paper published in 2023 used the HCL Patient Data Registry to evaluate response to treatment in female patients with HCL compared to male patients with HCL. This study was supported by the Hairy Cell Leukemia Foundation. Two principal authors, Dr. Narendranath Epperla from The Ohio State University and Dr. Leslie Andritsos from The University of New Mexico, shared key findings of the study during a March 2023 webinar hosted by the HCLF.

This program is in the past.

You can view materials from this webinar on the HCLF website here. >>

This meeting is in the past.

The HCLF does not share recordings of regional meetups in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

This meeting is in the past.

The HCLF does not share recordings of these meetups in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What is the HCLF Women’s Group?

The HCLF Women’s Group provides peer-to-peer support to women with HCL and their families. The group is led by a steering committee composed of women with HCL, HCLF staff, and board members. Meetings are held throughout the year for women, including roundtable discussions and occasional webinars on topics selected by the steering committee. These meetings are open to all women impacted by HCL anywhere in the world!

This meeting is in the past.

The HCLF does not share recordings of regional meetups in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

This meeting is in the past.

The HCLF does not share recordings of HCL coffee chats in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

What are HCL Coffee Chats?

HCL Coffee Chats are supportive group meetings for patients and their families. During HCL coffee chats, patients can share their stories and experiences and offer important encouragement and support to others. Coffee chats are moderated by HCLF volunteers, board members, and staff and promote respectful dialogue and connection. They do not include a slide presentation. These meetings are open to anyone, regardless of location, and are hosted on Zoom.

This meeting is in the past.

The HCLF does not share recordings of regional meetups in order to promote an open, welcoming space where everyone can share their stories and experiences. Stay tuned for future meetings.

This meeting is in the past.

The HCLF hosts a quarterly webinar during which leading hematologists and researchers from HCL Centers of Excellence provide an expert overview of HCL diagnosis, current treatment and clinical trials. People with HCL and their families are encouraged to register, listen and learn about this rare blood cancer and their options. These webinars are open to everyone, regardless of location.

You can view materials from this webinar on the HCLF website here. >>