Miércoles, 9 de septiembre de 2026
1:00 p. m. – 2:00 p. m. (hora del Este de EE. UU.)

Le invitamos a participar en nuestra Mesa Redonda en Español, el miércoles 9 de septiembre. La reunión comenzará a las 10:00 a. m. (hora del Pacífico), 12:00 p. m. (hora Central) y 1:00 p. m. (hora del Este) de los Estados Unidos,.

Nuestras mesas redondas se realizan por Zoom y ofrecen un espacio gratuito de apoyo entre pares para personas con leucemia de células peludas (HCL), variantes de HCL y sus familiares. Estas reuniones son facilitadas por miembros del equipo y voluntarios de HCLF.

Invitamos a todos los participantes a mantener un ambiente de respeto, empatía y apertura para que cada persona se sienta cómoda compartiendo sus experiencias. Para preservar un espacio seguro y acogedor, estas mesas redondas no se graban. Todas las personas afectadas por HCL son bienvenidas, sin importar en qué parte del mundo vivan.

Al inicio de la reunión, el equipo de HCLF realizará una breve bienvenida antes de dividir a los participantes en pequeños grupos de aproximadamente cinco o seis personas. Esto permite que todos tengan la oportunidad de hacer preguntas, compartir experiencias y establecer conexiones con otros participantes. Los médicos no participan en estas reuniones. Si desea escuchar a un hematólogo experto en HCL, le invitamos a participar en nuestros seminarios web y seminarios educativos.

INSCRÍBASE AQUÍ >>

We invite you to join our HCL Community Roundtable on Wednesday, August 26th. The meeting starts at 10 a.m. Pacific, 1 p.m. Eastern, and 12 p.m. Central.

Our roundtables are held on Zoom and offer peer-to-peer support for people with HCL, HCL variants, and their families. These free meetings are led by HCLF staff and volunteers.

We encourage everyone to be respectful and open-minded so all participants feel comfortable. To keep the space welcoming, we do not record these community roundtables. Anyone affected by HCL is welcome to join this community roundtable, no matter where you live.

During the community roundtable, the HCLF will give a brief introduction before you join small breakout groups. Each group has about 5 or 6 people, so everyone has a chance to ask questions and connect. Please note that physicians do not attend these meetings. If you want to hear from an expert hematologist, please check out our webinars and seminars.

REGISTER >>

Join us on Wednesday, July 1st - 10 am pacific, 1 pm eastern, 12 pm central - for a Women's Group Roundtable. REGISTER >>

Roundtables are moderated forums on Zoom providing peer-to-peer support to patients with HCL/HCL variant and their families. These meetings are moderated by HCLF staff and volunteers. [Hematologists or physicians do not participate in community roundtables.]

This roundtable is for all women impacted by HCL; it is a no-judgement space for women with HCL to listen and help each other. We encourage all women affected by HCL from anywhere in the world to join our community roundtable discussions.

REGISTER >>

We invite you to join us on Wednesday, June 17, from 2:00 to 3:00 pm Eastern (11:00 am to 12:00 pm Pacific, 1:00 to 2:00 pm Central) for an informative presentation and discussion.

Dr. James Blachly from the Ohio State University will share information about HCL diagnosis, standard treatments, and new research. This webinar is designed for patients with HCL and their families. After Dr. Blachly's talk, you will have a chance to ask questions during a Q&A session moderated by HCLF staff.

The Ohio State University is recognized as an HCL Center of Excellence.

REGISTER >>

Sábado 6 de Junio, 2026

11:00 AM to 12:00 PM

Únase a la Mesa Redonda para la Comunidad Hispana y Latina sobre la Tricoleucemia/ Leucemia de Celulas Peludas el Sábado, 6 de Junio, Hora: 11:00 a. m. - 12:00 PM (hora del Este de Los Estados Unidos ) via Zoom

Estas mesas redondas son foros moderados en Zoom, diseñados para brindar apoyo entre pares a pacientes y sus familias. Cada sesión es facilitada por miembros del equipo de HCLF, nuestra junta directiva y voluntarios comprometidos con la comunidad. Te Esperamos!

Regístrese aquí >>

Join us on Tuesday, June 2nd - 9:30 am pacific, 11:30 am central, 12:30pm eastern - for a Community Roundtable open to everyone. REGISTER >>

Roundtables are moderated forums on Zoom providing peer-to-peer support to patients with HCL and HCL variant and their families. These meetings are moderated by HCLF staff and volunteers. [Hematologists and physicians do not participate in roundtables.]

This roundtable is for everyone impacted by HCL. It is a no-judgement space for people with HCL and their families or support network to listen and help each other. We encourage anyone affected by HCL to join our community roundtable discussions.

REGISTER >>

Join us on Monday, June 1st, at 12:15 pm eastern (9:15 am pacific, 11:15 am central) for an important discussion about the Updated consensus guidelines for the diagnosis and management of patients with hairy cell leukemia (HCL) and HCL variant (HCLv).

Two co-authors, Drs. Michael Grever from the Ohio State University and Clive Zent from the University of Rochester, will discuss the guidelines and what's been updated and answer questions.

The updated guidelines published in April 2026 are the result of over two years of collaboration and effort by HCL experts around the world.

The updated guidelines reflect research and clinical trials conducted since the first guidelines were published in 2017.

REGISTER FOR THE WEBINAR >>

Please join us on Wednesday, May 20th - 11 am pacific, 1 pm central, 2 pm eastern - for an HCL Variant (HCLv) Roundtable. REGISTER >>

What is a community roundtable? Roundtables are moderated forums on Zoom providing peer-to-peer support for patients and their families. HCLF staff and board members facilitate these meetings. [Hematologists and physicians do not participate in roundtables.]

The HCL Variant roundtable is a welcoming space for people with the variant forms of HCL and their network to share experiences, answer questions, and support each other. We encourage everyone impacted by HCL variant, IGHV4-34 variant, and other less common forms of HCL to join.

REGISTER >>

Join us on Wednesday May 6th - 9:30 am pacific, 11:30 am central, 12:30pm eastern - for a Women's Group Roundtable. REGISTER >>

Roundtables are moderated forums on Zoom providing peer-to-peer support to patients with HCL/HCL variant and their families. These meetings are moderated by HCLF staff and volunteers. [Hematologists or physicians do not participate in community roundtables.]

This roundtable is for all women impacted by HCL; it is a no-judgement space for women with HCL to listen and help each other. We encourage all women affected by HCL from anywhere in the world to join our community roundtable discussions.

REGISTER >>

Convidamos você para participar da Mesa Redonda em Português, um espaço seguro e acolhedor para pacientes, familiares e cuidadores compartilharem suas experiências, dúvidas e aprendizados sobre a Tricoleucemia.

O objetivo deste encontro é fortalecer nossa comunidade lusófona, promover apoio mútuo e construir juntos um grupo de diálogo contínuo em português.

Tópicos principais:

Vivências com o diagnóstico e tratamento

Manejo de efeitos colaterais e qualidade de vida Apoio emocional e rede de suporte

Recursos e iniciativas da Hairy Cell Leukemia Foundation

Facilitador: Carlos – Diretor de Engajamento Multicultural e Insights, HCLF, e Graziela HCL Patient Advocate .

Instruções: Por favor, conecte-se alguns minutos antes do horário para testar áudio e vídeo. Recomendamos um ambiente silencioso e uma boa iluminação. A participação é voluntária e confidencial.

Time

18 de abril de 2025, às 11h00 (horário do leste dos EUA e Canadá)

Inscreva-se aquii

Join us on Monday, April 20th - 9:15-10:15 am pacific, 12:15-1:15 pm eastern, 11:15 am-12:15 pm central - for an HCL Community Roundtable open to everyone.

REGISTER >>

Roundtables are moderated forums on Zoom providing peer-to-peer support to patients with HCL/HCL variant and their families. These meetings are moderated by HCLF staff and volunteers. [Hematologists and physicians do not participate in roundtables.]

This roundtable is for everyone impacted by HCL. It is a no-judgement space for people with HCL and their families or support network to listen and help each other. We encourage anyone affected by HCL to join our community roundtable discussions.

REGISTER >>

Please join us on Wednesday, March 25th - 10 am pacific, 1 pm eastern, 12 pm central - for an HCL Variant (HCLv) Roundtable. REGISTER >>

What is a community roundtable? Roundtables are moderated forums on Zoom providing peer-to-peer support for patients and their families. HCLF staff and board members facilitate these meetings. [Hematologists and physicians do not participate in roundtables.]

The HCL Variant roundtable is a welcoming space for people with the variant forms of HCL and their network to share experiences, answer questions, and support each other. We encourage everyone impacted by HCL variant, IGHV4-34 variant, and other less common forms of HCL to join.

REGISTER >>

Join us on March 17th from 1:00-1:50 pm eastern (10:00-10:50 am pacific, 12:00-12:50 pm central) for an Understanding Hairy Cell Leukemia webinar with Dr. Robert Kreitman from the National Cancer Institute (NCI), NIH. The NCI is an HCL Center of Excellence.

This webinar will emphasize how HCL is diagnosed and the standard treatments for HCL available to most patients, as well as clinical trials and potential new treatments being studied in hairy cell leukemia. Following Dr. Kreitman's slide presentation, there will be time for audience Q&A.

We encourage everyone impacted by HCL and HCLv to register for this insightful webinar!

REGISTER >>

Sábado 7 de Marzo, 2026

11:00 AM to 12:00 PM

Únase a la Mesa Redonda para la Comunidad Hispana y Latina sobre la Tricoleucemia/ Leucemia de Celulas Peludas el Sábado, 7 de Marzo Hora: 11:00 a. m. - 12:00 PM (hora del Este de Los Estados Unidos ) via Zoom

Estas mesas redondas son foros moderados en Zoom, diseñados para brindar apoyo entre pares a pacientes y sus familias. Cada sesión es facilitada por miembros del equipo de HCLF, nuestra junta directiva y voluntarios comprometidos con la comunidad. Te esperamos!

Regístrese aquí >>

Join us on Thursday, March 5th - 10 am pacific, 1 pm eastern, 12 pm central - for a Women's Group Roundtable. REGISTER >>

This roundtable is for all women impacted by HCL; it is a no-judgement space for women with HCL to listen and help each other. We encourage all women affected by HCL from anywhere in the world to join.

What is a community roundtable? Roundtables are moderated forums on Zoom providing peer-to-peer support to patients with HCL/HCL variant and their families. These meetings are moderated by HCLF staff and volunteers. [Hematologists or physicians do not participate in community roundtables.]

REGISTER >>

Join us on Wednesday, February 4th - 10 am pacific, 1 pm eastern, 12 pm central - for a Community Roundtable open to everyone! REGISTER >>

What is a community roundtable? Roundtables are moderated forums on Zoom providing peer-to-peer support to patients with HCL/HCL variant and their families. Hematologists or physicians do not participate in community roundtables. [These meetings are moderated by HCLF staff and volunteers.]

This roundtable is for everyone impacted by HCL; it is a no-judgement space for people with HCL and their families or support network to listen and help each other. We encourage anyone affected by HCL to join our community roundtable discussions.

REGISTER >>

Convidamos você para participar da Mesa Redonda em Português, um espaço seguro e acolhedor para pacientes, familiares e cuidadores compartilharem suas experiências, dúvidas e aprendizados sobre a Tricoleucemia.

O objetivo deste encontro é fortalecer nossa comunidade lusófona, promover apoio mútuo e construir juntos um grupo de diálogo contínuo em português.

Tópicos principais:

Vivências com o diagnóstico e tratamento

Manejo de efeitos colaterais e qualidade de vida Apoio emocional e rede de suporte

Recursos e iniciativas da Hairy Cell Leukemia Foundation

Facilitador: Carlos – Diretor de Engajamento Multicultural e Insights, HCLF, e Graziela HCL Patient Advocate .

Instruções: Por favor, conecte-se alguns minutos antes do horário para testar áudio e vídeo. Recomendamos um ambiente silencioso e uma boa iluminação. A participação é voluntária e confidencial.

Time

Dec 13, 2025 10:00 AM Eastern Time (US and Canada)

Inscreva-se aqui

We invite you to participate in the Portuguese Roundtable, a safe and welcoming space for patients, family members, and caregivers to share their experiences, questions, and insights about Hairy Cell Leukemia.

The purpose of this meeting is to strengthen our Portuguese-speaking community, promote mutual support among peers, and build an ongoing dialogue group in Portuguese together.

Main Topics:

• Experiences with diagnosis and treatment

• Managing side effects and quality of life

• Emotional support and support networks

• Resources and initiatives from the Hairy Cell Leukemia Foundation

Facilitator: Carlos – Director of Multicultural Engagement & Insights, HCLF, and Graziela, HCL Patient Advocate.

Instructions:
Please connect a few minutes before the start time to test your audio and video. We recommend a quiet environment and good lighting. Participation is voluntary and confidential.

Time
December 13, 2025
10:00 AM Eastern Time (US and Canada)

Register here

Please join us on Wednesday, December 10 from 12:30-1:30 pm Eastern (9:30-10:30 am Pacific, 11:30 am - 12:30 pm Central) for an HCL Variant (HCLv) Community Roundtable. Roundtables are moderated forums on Zoom providing peer-to-peer support for patients and their families. HCLF staff and board members facilitate these meetings.

The HCL Variant roundtable is a welcoming space for people with the variant form of HCL and their network to share experiences, answer questions, and support each other. We encourage everyone impacted by HCL variant to join our community roundtable discussions.

Register online >>

Join us on Tuesday, December 9, from 12:30-1:30 pm Eastern (9:30-10:30 am Pacific, 11:30 am - 12:30 pm Central) for a Women's Group Roundtable.

This roundtable meeting will bring together women with HCL to share experiences and offer peer-to-peer support. We encourage all women from anywhere in the world to join this warm and welcoming group!

Register online >>

Join us on Wednesday, December 3, from 4-5 pm Eastern (1-2 pm Pacific, 3-4 pm Central) for a Community Roundtable open to everyone. Roundtables are moderated forums on Zoom providing peer-to-peer support to patients with HCL and HCL variant and their families. These meetings are moderated by HCLF staff and volunteers.

This roundtable is for everyone impacted by HCL. It is a no-judgement space for people with HCL and their families or support network to listen and help each other. We encourage anyone affected by HCL to join our community roundtable discussions.

Register online >>

Convidamos você para participar da Mesa Redonda em Português em 6 de dezembro de 2025, às 10:00 AM, Eastern Time (US and Canada), um espaço seguro e acolhedor para pacientes, familiares e cuidadores compartilharem suas experiências, dúvidas e aprendizados sobre a leucemia de células cabeludas (Tricoleucemia).

O objetivo deste encontro é fortalecer nossa comunidade lusófona, promover o apoio mútuo e, juntos, construir um grupo de diálogo contínuo em português.

Tópicos principais: Vivências com o diagnóstico e tratamento; Manejo de efeitos colaterais e qualidade de vida; Apoio emocional e rede de suporte; Recursos e iniciativas da Hairy Cell Leukemia Foundation.

Facilitador: Carlos – Diretor de Engajamento Multicultural e Insights, HCLF, e Graziela HCL Patient Advocate

Instruções: Por favor, conecte-se alguns minutos antes do horário para testar o áudio e o vídeo. Recomendamos um ambiente silencioso e uma boa iluminação.

A participação é voluntária e confidencial.

Inscreva-se aqui para participar

HCL Patient Seminar

Day Two: Living with Hairy Cell Leukemia

We are looking forward to our 2025 Patient Seminar, a two-day meeting on Zoom that will bring together patients and families to learn about a range of important topics with experts in HCL, nutrition, and emotional well being. Both days of the seminar will be held on Zoom. You can access the meetings using your desktop, laptop, tablet, or mobile phone. You can also dial in using a landline. (Note: if you use a landline phone, you will not access video or other visuals.)

Sunday, November 16, 2025 from 12:00-4:00 pm Eastern

Day Two of the HCLF Patient Seminar will focus on tips and skills to support good nutrition and emotional health and wellbeing.

Learn more and register >>

HCL Patient Seminar

Day One: Deepening Your Knowledge of HCL

We are looking forward to our 2025 Patient Seminar, a two-day meeting on Zoom that will bring together patients and families to learn about a range of important topics with experts in HCL, nutrition, and emotional well being. Both days of the seminar will be held on Zoom. You can access the meetings using your desktop, laptop, tablet, or mobile phone. You can also dial in using a landline. (Note: if you use a landline phone, you will not access video or other visuals.)

Saturday, November 15, 2025 from 12:00-4:00 pm Eastern

Day One of the HCLF Patient Seminar will focus on the symptoms of HCL, how doctors make an accurate diagnosis, effective treatments, and research and clinical trials that help us improve treatment and introduce new therapies.

Learn more and register >>

Please join us on Wednesday, October 29 from 12:30-1:30 pm Eastern (9:30-10:30 am Pacific, 11:30 am - 12:30 pm Central) for an HCL Variant (HCLv) Community Roundtable. Roundtables are moderated forums on Zoom providing peer-to-peer support for patients and their families. HCLF staff and board members facilitate these meetings.

The HCL Variant roundtable is a welcoming space for people with the variant form of HCL and their network to share experiences, answer questions, and support each other. We encourage everyone impacted by HCL variant to join our community roundtable discussions.

Register online >>

Join us on Tuesday, September 18, from 3:30-4:30 pm Eastern (12:30-1:30 pm Pacific, 2:30-3:30 pm Central) for a Women's Group Roundtable.

This roundtable meeting will bring together women with HCL to share experiences and offer peer-to-peer support. We encourage all women from anywhere in the world to join this warm and welcoming group!

Register online >>

Join us on Wednesday, September 11, from 4-5 pm Eastern (1-2 pm Pacific, 3-4 pm Central) for a Community Roundtable open to everyone. Roundtables are moderated forums on Zoom providing peer-to-peer support to patients with HCL and HCL variant and their families. These meetings are moderated by HCLF staff and volunteers.

This roundtable is for everyone impacted by HCL. It is a no-judgement space for people with HCL and their families or support network to listen and help each other. We encourage anyone affected by HCL to join our community roundtable discussions.

Register online >>

Sábado 6 de Septiembre, 2025

11:00 AM to 12:00 PM

Únase a la Mesa Redonda para la Comunidad Hispana y Latina sobre la Tricoleucemia/ Leucemia de Celulas Peludas el Sábado, 6 de Septiembre Hora: 11:00 a. m. - 12:00 PM (hora del Este de Los Estados Unidos ) via Zoom

Estas mesas redondas son foros moderados en Zoom, diseñados para brindar apoyo entre pares a pacientes y sus familias. Cada sesión es facilitada por miembros del equipo de HCLF, nuestra junta directiva y voluntarios comprometidos con la comunidad.

Regístrese aquí >>

Join us August 14th from 2:00-3:00 pm eastern (11 am-12 pm pacific, 12-1 pm mountain, 1-2 pm central) for an informative webinar with Dr. Leslie Andritsos from the University of New Mexico. Dr. Andritsos will discuss Hairy Cell Leukemia (HCL) diagnosis and symptoms, standard therapies, and emerging treatments. This program is part of the HCLF's 'Understanding HCL' webinar series.

The University of New Mexico is an HCL Center of Excellence.

Register online >>

About Dr. Andritsos:

Dr. Leslie Andritsos is a board certified practicing Hematologist at the University of New Mexico Comprehensive Cancer Center and a Professor in the Department of Internal Medicine, Division of Hematology/Oncology. Her interest lies in the treatment of hematological malignancies with a focus on blood and marrow transplantation and cellular therapies. In this role, her work has focused on developing improvements in the care of patients undergoing blood and marrow transplantation, post-transplant modifications, and improvements in quality of care and outcomes of patients with chronic lymphomas and leukemias. As a clinical investigator, her clinical and translational research efforts have focused largely on the study and treatment of chronic lymphocytic leukemia and rare disease research in Hairy Cell Leukemia. Under her direction, and along with her team of hematopathologists, UNMCCC was selected to be a Center of Excellence for the management of Hairy Cell Leukemia by the Hairy Cell Leukemia Foundation. Within this role Dr. Andritsos collaborates with a multicenter, multidisciplinary research team which consists of scientists, clinicians, pathologists, and biomedical informatics specialists who have developed an international patient data registry which is currently enrolling patients. In addition, Dr. Andritsos serves as the Chair of the Scientific Review Committee for this project. Her own research in hairy cell leukemia focuses on refining diagnostic criteria for HCL, updating risk stratification profiling, and quality of life assessments.

Please join us on Wednesday, August 13, from 12:30-1:30 pm Eastern (9:30-10:30 am Pacific, 11:30 am - 12:30 pm Central) for an HCL Variant (HCLv) Community Roundtable. Roundtables are moderated forums on Zoom providing peer-to-peer support for patients and their families. HCLF staff and board members facilitate these meetings.

The HCL Variant roundtable is a welcoming space for people with the variant form of HCL and their network to share experiences, answer questions, and support each other. We encourage everyone impacted by HCL variant to join our community roundtable discussions.

Register online >>

Join us on Tuesday, July 29, from 4:30-5:30 pm Eastern (1:30-2:30 pm Pacific, 3:30-4:30 pm Central) for a Women's Group Roundtable.

This roundtable meeting will bring together women with HCL to share experiences and offer peer-to-peer support. We encourage all women from anywhere in the world to join this warm and welcoming group!

Register online >>