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HCLF Women’s Group
We know that hairy cell leukemia affects more men than women. We also know that having a rare disease can be isolating, perhaps even more so for women as they may rarely meet other women with HCL. We have built a network of women around the world who are living with hairy cell leukemia. Whether you are recently diagnosed, have relapsed, or have been in remission for years, we hope you will find valuable resources and support.
Women’s Group Roundtable
The Women’s Group roundtable brings together women with HCL from around the world to share experiences, ask questions, and offer peer-to-peer support. Women’s group roundtables occur every two months.
Upcoming meetings
March 5th - 1 pm eastern REGISTER >>
May 6th - 12:30 pm eastern REGISTER >>
July 1st - 1 pm eastern REGISTER >>
Webinars
The HCLF Women’s Group steering committee identifies topics each year of particular interest to women with HCL and organizes occasional webinars to engage women in discussions.
Coping Well With Chronic Illness - June 9, 2023
Presenter: Emily Blackmer, MSW, LGSW, Mayo Clinic, Rochester, MN
Gender and Patient Outcomes in HCL, An HCL Patient Data Registry Analysis - March 24, 2023
Presenters: Dr. Leslie Andritsos, The University of New Mexico and Dr. Naren Epperla, The Ohio State University.
Role of Integrative Oncology in Cancer Care - May 16, 2022
Speaker: Smitha Mallaiah, MSc, C-IAYT, Sr. Mind-Body Interventions Specialist, University of Texas, MD Anderson Cancer Center
2025 Women’s Group Steering Committee
Sarah Naperala, Chair (Michigan)
Adi Weber (New York)
Megan Hewitt (Oregon)
Mareike Joedicke (California)
Lisa Lowrey (Massachusetts)
Josephine Militello (Michigan)