Our Mission and History
The Hairy Cell Leukemia Foundation has the mission to improve outcomes for patients with hairy cell leukemia through research, by advancing knowledge about HCL among hematologists, and by providing educational resources and comfort to patients and their families.
Our organization has its roots in a volunteer patient-led group founded in the 1980s at the University of Chicago. They developed a strong patient network, a meaningful accomplishment during the pre-Internet era. In 2008, an international group of experts in HCL management met to discuss areas for collaboration to advance the treatment and management of HCL. They formed the Hairy Cell Leukemia Research Consortium with an emphasis in scientific research and established a comprehensive web site to inform patients and their physicians about HCL. These two groups ultimately merged, becoming today’s Hairy Cell Leukemia Foundation. This merger brought each organization’s core competencies of strong patient relationships and research acumen together under one umbrella, resulting in an organization positioned to move the needle in discovery and positively impact patients.
Our Leadership
Board of Directors and Executive Staff
2024 Board of Directors
Keith Markbreiter, President (California)
Dr. Michael Margolin, Vice President (New Jersey)
Adi Weber, Vice President (New York)
Kenneth Jensen, Treasurer (Illinois)
Marc Stadtmauer, Secretary (New York)
Brian P. Friedman (New York)
Tim Maher (Tennessee)
Sarah Naperala (Michigan)
Bobby Patrick (Virginia)
Scott Svoboda (Illinois)
Dr. Kirk Zachary (New York)
Director Emeritus
Earl J. Stone (Illinois)
Executive Director
Anna T. Lambertson (California)
Scientific Advisory Committee
Scientific Advisory Committee Chair
Dr. Michael Grever - The Ohio State University Comprehensive Cancer Center-The James, USA
Scientific Advisory Committee Members
Dr. James Johnston - Manitoba Institute of Cell Biology
Dr. Robert J. Kreitman - National Cancer Institute, NIH
Dr. Tamar Tadmor - Bnai-Zion Medical Center, Israel
Dr. Martin Tallman - Chicago, IL
Dr. Enrico Tiacci - University and Hospital of Perugia
Dr. Bernhard Wörmann - The Charité – Universitätsmedizin Berlin
Dr. Clive Zent - James P. Wilmot Cancer Institute, University of Rochester Medical Center
Contact Us
Mail should be addressed to:
Hairy Cell Leukemia Foundation
77 Van Ness Ave Ste 101 #1617
San Francisco, CA 94102
Mail continues to be monitored at our New York mailbox:
82 Nassau St. #343
New York, NY 10038
Office Phone: +1.224.355.7201
General Email: info@hairycellleukemia.org