Our Mission and History

The Hairy Cell Leukemia Foundation has the mission to improve outcomes for patients with hairy cell leukemia through research, by advancing knowledge about HCL among hematologists, and by providing educational resources and comfort to patients and their families. 

Our organization has its roots in a volunteer patient-led group founded in the 1980s at the University of Chicago. They developed a strong patient network, a meaningful accomplishment during the pre-Internet era. In 2008, an international group of experts in HCL management met to discuss areas for collaboration to advance the treatment and management of HCL. They formed the Hairy Cell Leukemia Research Consortium with an emphasis in scientific research and established a comprehensive web site to inform patients and their physicians about HCL. These two groups ultimately merged, becoming today’s Hairy Cell Leukemia Foundation. This merger brought each organization’s core competencies of strong patient relationships and research acumen together under one umbrella, resulting in an organization positioned to move the needle in discovery and positively impact patients.


Our Leadership

Board of Directors and Executive Staff

 

2024 Board of Directors

Keith Markbreiter, President (California)

Dr. Michael Margolin, Vice President (New Jersey)

Adi Weber, Vice President (New York)

Kenneth Jensen, Treasurer (Illinois)

Marc Stadtmauer, Secretary (New York)

Brian P. Friedman (New York)

Tim Maher (Tennessee)

Sarah Naperala (Michigan)

Bobby Patrick (Virginia)

Scott Svoboda (Illinois)

Dr. Kirk Zachary (New York)

Director Emeritus

Earl J. Stone (Illinois)

Executive Director

Anna T. Lambertson (California)

Board and Program Committees

 

Scientific Advisory Committee

 

Scientific Advisory Committee Chair

Dr. Michael Grever - The Ohio State University Comprehensive Cancer Center-The James, USA

Scientific Advisory Committee Members

Dr. James Johnston - Manitoba Institute of Cell Biology

Dr. Robert J. Kreitman - National Cancer Institute, NIH

Dr. Tamar Tadmor - Bnai-Zion Medical Center, Israel

Dr. Martin Tallman - Chicago, IL

Dr. Enrico Tiacci - University and Hospital of Perugia

Dr. Bernhard Wörmann - The Charité – Universitätsmedizin Berlin

Dr. Clive Zent - James P. Wilmot Cancer Institute, University of Rochester Medical Center


Contact Us

 

Mail should be addressed to:

Hairy Cell Leukemia Foundation

77 Van Ness Ave Ste 101 #1617

San Francisco, CA 94102

Mail continues to be monitored at our New York mailbox:

82 Nassau St. #343

New York, NY 10038

Office Phone: +1.224.355.7201

General Email: info@hairycellleukemia.org

 

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