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Hairy Cell Leukemia (HCL) Seminars for Patients and Families
For over 10 years, the HCLF has hosted a free full-day seminar, connecting patients and families with expert speakers and informative panel discussions, and unparalleled opportunities for networking with others who have similar experiences. These seminars have been held nearly every year since 2013, often hybrid or in person.
2026 PATIENT SEMINAR
On October 24, 2026, the HCLF hosted a free, full-day hybrid seminar, with options to participate in person in New York City or online through Zoom. The meeting brought together people living with HCL and HCLv and their families to learn from experts and connect with our community.
Topics included understanding HCL and when treatment is needed; preparing for treatment, recovery, and life after treatment; current treatment options, including chemotherapy-free approaches; nutrition; and an overview of the HCL Patient Data Registry.
Speakers included experts from The Ohio State University, CancerCare Manitoba, the National Cancer Institute, Memorial Sloan Kettering Cancer Center, and the University of New Mexico Comprehensive Cancer Center.
We have developed a packet for the seminar. It includes the agenda, speaker bios, links to key resources on our website, a QR code to give to the HCLF, and an important glossary of HCL terms. Click here to access 2026 HCL Patient Seminar Welcome and Resource Packet >>
Seminar materials will be available soon. We are preparing materials from the meeting to help patients and families revisit the information shared or explore it for the first time.
Please check this page for updates. We will also announce through HCLF communications and social media when the seminar materials are available to view.
Past Seminars
2025 Patient Seminar
In November 2025, the HCLF hosted an online, two-day seminar. The meeting brought together patients and families to learn about a range of important topics with experts in HCL, nutrition, and emotional well-being. Speakers included leading hematologists and researchers from the Ohio State University, Memorial Sloan Kettering Cancer Center, and Mayo Clinic, as well as experts in topics such as nutrition and mental health from the University of New Mexico Comprehensive Cancer Center and the Mayo Clinic.
The seminar also offered pre-recorded sessions from experts at the NIH, Triage Cancer, and other institutions.
2024 Patient Seminar - New York, NY (Hybrid)
Materials from this meeting are not currently available.
2024 Patient Seminar - Columbus, OH (Hybrid)
In September 2024, the HCLF hosted a hybrid HCL patient seminar on the campus of the Ohio State University in Columbus. Speakers included Dr. Michael Grever, Dr. Kerry Rogers, and Dr. James Blachly, all three affiliated with OSU.
View a transcript from the Columbus seminar >>
2023 Patient Seminar (Hybrid)
In October 2023, the HCLF hosted a full-day, hybrid seminar for people with HCL and their family members. The seminar was held in London, UK with participation via Zoom for individuals unable to travel. This was the first in-person seminar since COVID-19.
View 2023 seminar materials >>
2021 Patient Seminar (Zoom)
In October 2021, the HCLF hosted educational sessions over three days, with presentations on diagnosis and treatment, commonly asked questions, and diet and nutrition.
View 2021 seminar materials. >>
2020 Patient Seminar (Zoom)
In October 2020, the HCLF transitioned the patient seminar online due to COVID and hosted a half-day patient seminar with guest speakers Dr. Kerry Rogers (Ohio State University) and Dr. Robert Kreitman (National Cancer Institute, NIH).
