Seminars for Patients with Hairy Cell Leukemia

A diagnosis of hairy cell leukemia, as with other rare diseases, can be lonely. The patient’s doctor, family members and friends may have had little if any exposure to this type of cancer. The patient may feel isolated.

Since 2013, our annual Patient Seminar has helped patients from around the world learn from leading researchers and doctors and connect with other people affected by HCL.

The seminar is held each year in conjunction with our conference for healthcare professionals. Leading experts in HCL who attend the conference also participate in the patient seminar as speakers and presenters. The seminar has become an effective way for patients to strengthen their understanding of HCL and build community connections that ease feelings of loneliness and isolation.

2019 Patient Seminar - October 26, 2019

The 2019 Patient Seminar will be held as a webinar on October 26, 2019 in conjunction with our annual conference for healthcare professionals. We want to encourage participation from around the world and know that the conference location this year will make in-person participation difficult for many patients and caregivers. We are organizing a webinar at the conclusion of our conference that will feature HCL experts and offer focused discussion and Q&A. The webinar will be held at 2 pm Rome, Italy time (8 am Eastern, 5 am PST). We hope this time frame will allow patients and caregivers to log in and join the discussion from multiple locations around the world.

Pre-registration will be required. Registration will open soon.

Other educational meetings for patients: We are taking HCL education on the road with a new series of in-person forums. These forums will be shorter in length than the seminar. Visit our patient forums page to learn more.>>

To explore presentations and audio recordings of past seminars, visit:

2018 Patient Seminar - New York, NY, USA

2017 Patient Seminar – Columbus, OH, USA

2016 Patient Seminar - Heidelberg, Germany (materials unavailable)

2015 Patient Seminar – Chicago, IL, USA

2014 Patient Seminar – London, England

2014 Patient Seminar – Houston, TX, USA

2013 Patient Seminar – New York, NY, USA