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HCL Community Roundtables
What is a community roundtable? These are moderated Zoom meetings where patients and their families can support each other. HCLF staff and volunteers lead the sessions. We ask everyone to be respectful and open-minded so everyone feels comfortable. To help create a welcoming space, we do not record the meetings.
Who can join? Anyone affected by HCL can join these meetings for free. You are welcome to take part no matter where you live.
What to expect during a community roundtable: After a short introduction from HCLF, you will join breakout groups to ask questions and connect with others. Please note that hematologists and physicians do not attend these meetings. If you are looking for a presentation from an expert hematologist, visit our webinars and seminars.
Community Roundtable: Open to All
The open roundtable welcomes anyone affected by HCL. It offers a safe, judgement-free space where people with HCL, their families, and support networks can listen, ask questions, and support one another. The roundtable meets every two months.
Upcoming meetings:
April 9th - 2 pm eastern REGISTER >>
June 2nd - 12:30pm eastern REGISTER >>
Community Roundtable: Small Groups
Along with our open roundtable, we also offer small group roundtables focused on specific needs, like living with the HCL variant. These smaller groups help make sure important topics are not overlooked. We hope you find a roundtable that meets your needs, no matter where you are in your HCL journey.
HCL Variant (HCLv) Roundtable
The HCL Variant roundtable is a welcoming space for people with the variant forms of HCL, such as HCLv and IGHV4-34, and their family members to share experiences, ask questions, and support each other. HCL variant roundtables occur every two months.
Upcoming meetings:
March 25th - 1pm eastern REGISTER >>
May 20th - 2 pm eastern REGISTER >>
Women’s Group Roundtable
The Women’s Group roundtable brings together women with HCL from around the world to share experiences, ask questions, and offer peer-to-peer support. Women’s group roundtables occur every two months. Visit the Women’s Group page.
Upcoming meetings:
May 6th - 12:30 pm eastern REGISTER >>
July 1st - 1 pm eastern REGISTER >>
Mesa Redonda en Español / Hispanic Roundtable for Spanish Speakers
La Mesa Redonda del Grupo Hispano y Latino reúne a pacientes y familiares de habla hispana para compartir experiencias en español, hacer preguntas y brindar apoyo entre pares. / The Hispanic and Latino Roundtable brings together Spanish-speaking patients and families to share experiences in Spanish, ask questions, and offer peer-to-peer support. We aim to create a safe and trusted space where everyone can freely express themselves.
Upcoming meetings
Sábado 7 de marzo, 2026 Regístrese aquí >>
Sábado 6 de junio, 2026 Regístrese aquí >>
Clinical Trials Roundtable
The Clinical Trials roundtable is for people with HCL and their support network to learn about HCL clinical trials from other patients. During each roundtable, one or more patients who have joined trials will share their experiences and answer questions. We hope to raise awareness of opportunities to make a difference in HCL research.
Upcoming meetings:
Stay tuned for the 2026 meeting schedule.
