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HCLF Community Roundtables

In 2024, we expanded our programs for patients with a Community Roundtable series. Roundtables are forums on Zoom providing peer-to-peer support to patients and their families. Each roundtable is moderated by HCLF staff, board members, or volunteers. We request respectful conversation and an open mind to ensure a positive environment for all participants.

To encourage open dialogue and welcoming environment, we do not share recordings of the roundtable meetings.

 

Family Support Roundtable

The Family Support roundtable is a welcoming space for family members, partners or close friends of people with HCL to listen and help each other, becoming stronger supports for their loved ones with HCL. We encourage anyone helping a patient with HCL navigate their journey to join our family support roundtable discussions.

Upcoming meetings

May 16 from 12:30 to 1:30 pm Eastern Register. >>

Clinical Trials Roundtable

The Clinical Trials roundtable is for people with HCL and their support network to learn about HCL clinical trials from other patients. During each roundtable, one or more patients who have joined trials will share their experiences and answer questions. We hope to raise awareness of opportunities to make a difference in HCL research.

No upcoming meetings. Stay tuned.

 
 

HCL Variant Roundtable

The HCL Variant roundtable is a welcoming space for people with the variant form of HCL and their family members to share experiences, ask questions, and support each other. We encourage everyone impacted by HCL Variant to join our community roundtable discussions.

Upcoming meetings

June 5 from 3:00 to 4:00 pm Eastern Register. >>

Women’s Group Roundtable

The HCLF Women’s Group roundtable brings together women with HCL to share experiences, ask questions, and offer peer-to-peer support. We encourage all women impacted by HCL from anywhere in the world to join this warm and welcoming group!

Visit our HCLF Women’s Group page.

Upcoming meetings

June 6 from 12:30 to 1:30 pm Eastern Register. >>