Ask an Expert about Hairy Cell Leukemia

We want all patients and family members affected by hairy cell leukemia to have the information they need to gain comfort and be supported through treatment and beyond. Through our Ask an Expert program, we receive phone calls and emails each week from patients around the world. Their stories and needs differ - some have recently been diagnosed with hairy cell leukemia or have relapsed, others are in remission. We leverage the knowledge and experience of our community and international network of experts to support these patients in their journey and empower them to make informed decisions with their doctors.

In 2018, our Ask an Expert program directly supported over 130 patients from 13 countries and 5 continents.

How does it work?

When a patient with hairy cell leukemia contacts us, we read and listen closely and ask questions to make sure we understand their needs. We provide facts, resources, and referrals to support them in making health care decisions. We consult the most current research as well as our network of internationally recognized advisors and HCL experts to tailor our response to each inquiry.

Whenever possible, we encourage patients to seek medical consultation and treatment at one of our Centers of Excellence.

Our Ask an Expert program does not replace the patient's doctor or caregiver. We will not diagnose disease or prescribe treatment by email or phone, and we strongly encourage patients to consult closely with their doctor on all medical matters. The resources we provide are intended for informational purposes and are not a substitute for professional medical advice, diagnosis or treatment.

Do you have a question about hairy cell leukemia?

Please contact us using the form below or by calling our office at +1.224.355.7201.

We receive inquiries from patients around the United States and abroad. We maintain confidentiality and will never share your contact information or health information without your consent.

Please complete the form below

You will receive a reply via info@hairycellleukemia.org, usually within 3-5 business days.

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