Hairy Cell Leukemia Patient Data Registry

Why is the Registry important for Hairy Cell Leukemia?

Hairy Cell Leukemia is a rare disease. Patients with HCL are diagnosed and treated by many different doctors around the world. This makes it difficult for researchers to identify common factors that may help them better understand hairy cell leukemia and find more effective treatments.

How will the Registry make a difference?

The HCL Patient Data Registry will help researchers study HCL in ways not previously possible given the rarity of the disease. The Registry will help researchers identify new trends in patient outcomes, discover previously unknown complications of the disease, and design clinical trials to identify new therapies.

Temporary Pause on Adding New Patients

Effective June 2, 2025, there is a temporary pause on adding new patients to the HCL patient data registry. This pause will allow our dedicated registry team at the Ohio State University the time they need to make important technical updates and train new staff.

As soon as we can, will re-open the portal for new patients wishing to join this important initiative.

We appreciate your patience and understanding!