Share Your Story

Stories are powerful. By sharing your story, you’re helping others know what they might experience when they’re diagnosed or treated for HCL. You’re letting other patients and families know they’re not alone. You’re helping others in their journey.

You’re also helping us develop better resources to support all patients, now and in the future.

Share Your Story Form

To help you narrate your experience with hairy cell leukemia, we have some questions below. Share as much or as little as you feel is important to convey your experience.

Please read the consent agreement here. >>

Name

First Name

Last Name

Address

Address 1

Address 2

City

State/Province

Zip/Postal Code

Country

Number

Please share your phone number so we can reach out to discuss your story or to ask follow-up questions.

Are you a

When and how were you first diagnosed with hairy cell leukemia? How would you describe this process?

What treatment(s) did you receive and how did you respond to treatment? How would you describe your experience and the steps you took to decide which treatment to use?

If you’ve relapsed since your first diagnosis, can you describe your experience? For example, for how long were you in remission before relapsing and how did you learn you’d relapsed? What treatment did you receive to treat relapse and how did you respond?

Whether you are newly diagnosed, relapsed, or in remission, can you describe how you’ve built a support network? Where have you turned for connections with patients or for advice and support? How has your family been part of your support network? How have your friends been part of your support network?

What would you say to someone who has just been diagnosed with hairy cell leukemia? What advice would you offer to them or their families?

Is there anything else you would like to say about your experience with hairy cell leukemia?

I have read and agreed to the consent agreement.

You must agree to the consent agreement for the Hairy Cell Leukemia Foundation to share your story.