Where to Start: Your Guide to the HCLF's Patient Support

If this is your first time visiting the Hairy Cell Leukemia Foundation (HCLF), welcome! We know that getting a diagnosis of hairy cell leukemia (HCL) can be stressful and confusing. But you're in the right place—we're here to help you every step of the way. In this blog, we want to show you how HCLF can support you with reliable information and a caring community of other patients and their families.

Evidence-Based Information

We hold regular webinars with doctors and researchers where you can learn about treatment options and clinical trials for HCL.

Our webinar, "Understanding Hairy Cell Leukemia," is a great chance to hear from experts about diagnosis, recovery, and treatment. We also have webinars focused on clinical trials, where researchers explain who can join their studies. You can learn more on the HCLF website.

Our "Ask an Expert" portal is here to give you the facts, resources, and referrals you need to make smart healthcare decisions. We work with the latest research and a network of HCL specialists to provide information that fits your needs. You can find out more on our website.

HCLF funds research projects that may change how we understand and treat this rare disease. Researchers share their findings by publishing in major scientific journals, and you can read about their work on our website.

Peer Support

Whether you're newly diagnosed, in remission, or facing a relapse, you can connect with other patients and families through our forums and meetings.

Join our online community forum! Signing up is simple—just enter your name, email, and a password you choose. After you sign in, you can ask questions, share your story, and learn from others’ experiences.

Our live Community Roundtable series offers a Zoom space where people with HCL and their families can come together to support one another. Join an upcoming roundtable!

We’re here for you—reach out and connect with us!