Support for Patients with HCL and HCLv
Educational Webinars and Seminars
Educational Webinars
We regularly offer webinars where hematologists and researchers from HCL Centers of Excellence share expert updates on HCL diagnosis, current treatments, and clinical trials. Learn more >>
Community Roundtables
Community Roundtables are forums on Zoom providing peer-to-peer support to patients and their families. Learn more >>
Patient Seminars
We hold an annual seminar where patients and families can hear from expert speakers, join panel discussions, and meet others with similar experiences. Learn more >>
Tools to Help Patients Make Informed Decisions
Ask an Expert
This program from HCLF offers facts, resources, and referrals to help patients make informed health care choices.
Questions to Ask Your Doctor
We have gathered key questions to help you talk with your hematologist. These questions can help you learn more about your diagnosis, know when to start treatment, manage side effects, and maintain your quality of life.
Program Calendar
Learn about and register for a roundtable, webinar, or other meeting.
Ways for Patients to Contribute to HCL Research
HCL Patient Data Registry
You can help bridge gaps in HCL research and contribute to important discoveries that may improve care for all patients.
Clinical Trials
Clinical trials are carefully controlled research studies that can help improve HCL treatment and quality of life for patients.
Focused Support for Patients and Families
Hispanic and Latino Families
HCL affects people in different ways, including those in Hispanic and Latino communities. We are developing programs to give better information and support to these families.
Online Patient Community
No matter if you are newly diagnosed, in remission, or have relapsed, connecting with others who have similar experiences can be helpful. The online community lets you ask questions and talk with other patients. Join the online community >>
Visit our Digital Library
We fund promising research to strengthen our shared understanding of HCL, develop new treatments, and improve outcomes for patients. Many HCLF grantees have published their findings in leading journals, advancing knowledge of HCL and bringing us closer to a cure. We maintain an archive of published HCL research on our website.
Looking for assistance with co-pays or travel to appointments? In addition to our programs, we encourage those affected by hairy cell leukemia to seek the support they need, when and where they need it. There are cancer-related organizations that provide a variety of resources and information for patients such as financial assistance and help in navigating clinical trials. Learn more. >>